A community resource for pediatric stroke survivors and their families

Archive for the ‘THERAPY OPPORTUNITIES & RESEARCH STUDIES’ Category

Research Study Participants Needed

Dear Colleague,

The International Alliance for Pediatric Strokewww.iapediatricstroke.org (IAPS) is assisting Dr. Jeffrey Max with recruitment for a possible future childhood stroke research study. There has been very little research regarding behavior and emotions for the pediatric stroke population, but there is a need to address these issues which continue to affect not only the child but the entire family unit. Dr. Max currently works at the University of California, San Diego where he is recognized internationally for his research in pediatric traumatic brain injury and also pediatric stroke. The thrust of the research is to identify brain imaging characteristics including microstructural white matter integrity and lesion location as well as psychosocial (e.g., family function, family psychiatric history, child’s pre-injury function) predictors of varied psychiatric disorders that develop after brain injury.

Travel expenses to participate in this study will be covered within North America. However, there are no geographic restrictions to participate. For more information about travel options from other countries, please contact Dr. Max.

If your child is between the ages of 8 – 17 and had a stroke before the age of 14, please review the information below and use the contact information to reach Dr. Max. He will need to ask a few screening questions to determine if your child is eligible to participate.

Childhood Stroke Study at the University of California, San Diego and Children’s Hospital and Health Center, San Diego:  Dr. Jeffrey Max and his colleagues are seeking children ages 8-17 who have had a stroke before the age of 14 to participate in a research study.  The project, “Childhood Stroke: Attention and ADHD,” is designed to provide more information regarding emotions, behavior, and thinking in children and adolescents who have had a stroke.  Participation includes one morning or afternoon for about 3 ½ hours of testing at Children’s Hospital and Health Center, San Diego, plus about 1 hour for an MRI appointment at a nearby MRI facility.  There will be no costs for participation, including the MRI.  Monetary compensation will be provided.

For more information or with interests in participating, please contact Dr. Jeffrey E. Max.  Write to: 3020 Children’s Way, San Diego, CA  92123, MC: CHSD 5018.  Telephone: (858) 966-5832 x5743.  E-mail: jmax@ucsd.edu.

One of the benefits of having an organization such as IAPS is to be the liaison between researchers, doctors and families. We are reaching out to all of you as organization leaders to help in recruitment for this cutting edge research. Please disseminate this email to the families in your data base and encourage them to contact Dr. Max. If you have a social media site, we encourage you to post the recruitment information on there as well. We hear from quite a few families asking what they can do to help advocate for these children. This is a chance for families to get involved in an area of research for pediatric stroke that has not been widely explored and help make a difference for the future of these children.

Thank you for your support and assistance!

Warm regards,

The Board of Directors for the International Alliance for Pediatric Stroke:

Mary Kay Ballasiotes

Dr. Steve Ashwal

Dr. Gabrielle deVeber

Nikki Ide

Jessica Spear

Dr. Patrice Lindsay

Francesca Fedeli

Potential FUNDING sources

Grant Sources for Special Needs Kids:
I make every effort to provide high-quality and helpful grant information, but  cannot be held liable for errors or the quality of the grant sources. Information should be independently verified and confirmed. Please email me if you’d like to add or update any information! Thanks.

Variety Children’s Charity of Northern California is offering a Therapeutic Scholarship.

http://www.varietync.org/

Avery-Fuller-Welch Children’s Foundation

– The mission of the Avery-Fuller-Welch Children’s Foundation is to provide grant funding for early intervention and professional guidance to children with physical, behavioral, emotional, and learning challenges.

http://www.pfs-llc.net/afw/index.html

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Bright Steps Forward
– Grants for state-of-the-art therapy techniques, along with more traditional physical
therapy methods to achieve rapid strides in physical strength and coordination. www.brightstepsforward.org
 —
Children’s Charity Fund
– Provides services and purchases medical equipement for handicapped and disabled children, provides educational grants to help children further their education.
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Disabled Children’s Relief Fund
– Provides assistance to obtain wheelchairs, orthopedic braces, walkers, lifts, hearing aids, eye glasses, medical equipment, physical therapy, and surgery.
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Easter Seals
– Provides services to help children and adults with disabilities and/or special needs as well as
support to their families.
http://www.easterseals.com

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First Hand Foundation
– Assists children with clinically relevant, health-related needs and no financial resources to cover these expenses.
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Gracie’s Hope
– Funding for therapies such as, but not limited to, PT, OT, Speech, Chelation, and Hyperbaric
Oxygen Therapy. Provides needed equipment and assist families in finding respite care, and other neededservices.
Kya’s Krusade
– Provides financial assistance for adaptive equipment and physical therapy, occupational
therapy and hippotherapy sessions.
 —
Lindsay Foundation
– Assists families with resources necessary to provide medical treatment, therapies and rehabilitative equipment in order to improve the quality of life for their special needs children.
 —
Parker’s Purpose
– Monetary assistance up to $1,000.
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United Healthcare Children’s Foundation
– Grants for medical-related services that have the potential to
significantly enhance either the clinical condition or the quality of life of the child and that are not fully covered by the available commercial health benefit plan.
Variety Children’s Charity
– Helps kids gain mobility, confidence, freedom, independence and the chance to join in the life of their community by providing funding for walkers, wheelchairs, specially-designed adaptive
bikes, strollers, prosthetic limbs and other devices to families with the most need.