A community resource for pediatric stroke survivors and their families




















Find one in your area! If you don’t know how, contact Support for Families for help:

Support for Families 415-920-5040

Great trainings, support groups, advocacy, training, resource library, help line, parent mentors, bilingual support, provide support/advocacy for you in your IEP, and so much more.
They have an IEP training every month in English and Spanish. Trainings & events are always free, and childcare can be provided if you arrange it ahead of time.

You can also ask them for a CASE consult. CASE is the Community Alliance for Special Education and they provide advocates and lawyers to help families with any special education/inclusion issues. You can get a free consult with them if you request it trough Support for Families.


{http://www.disabilityrightsca.org/pubs/504001.pdf,Special Education Rights and Responsibilities Handbook}





Sensory Social Playgroups
Cassie Britton and Fiona Zecca
Richard King at KidSpace also offers social play-groups for a range of kids:


Developmental Optometrist:
Dr. David Grisham, OD, MS, FAAO Dr. Jeremy Shumaker, OD


Communication Works
4400 Keller Avenue
Oakland, California 94605
ph 510.639.2929
fax 510.639.2977

Lara Martinez, Speech Therapist



Social Thinking/Michelle Garcia Winner
They have great trainings and lots of great online resources as well.


BOOKS on Inclusive Themes
Most of these titles are available through your public library, school library, or Support for Families Resource Library:

|Don’t Call Me Special |Pat Thomas|K-2|
|It’s Okay to Be Different |Todd Parr|K-1|
|Friends At School |Rochelle Bunnett|K-1|
|Someone Special, Just Like You |Tricia Brown|K-2|
|Susan Laughs |Jeanne Willis|K-2|
|My Friend Isabelle |Eliza Woloson|K-2|
|Eggbert the Slightly Cracked Egg |Tom Ross|K-2|
|Tibby Tried It |Sharon Useman|K-2|
|Ballerina Dreams |Lauren Thompson|K-2|
|Let’s Talk about It: Extraordinary Friends|Fred Rogers |K-2|
|Rolling Along: The Story of Taylor and His Wheelchair |Jamee Riggio Heelan|K-2|
|All Kinds of Friends, Even Green! |Ellen B. Senisi |K-3|
|Views from Our Shoes: Growing Up With a Brother or Sister With Special Needs |Donald Meyer|3-8|
|Amazingly… Alphie! Understanding and Accepting Different Ways of Being |Roz Espin |2-4|
DVDs on Inclusion

[Title|Age Level]
|Happy To Be Nappy And Other Stories Of Me|K-5|
|What Do You Do With The Mad That You Feel?|K-5|
|Including Samuel|Documentary for grown-up and family viewing|
|Videos and books By Rick Lavoie|For parents and professionals|
|Video about how a football team integrated a special needs player (Link)|https://www.upworthy.com/watch-an-entire-team-of-teenage-football-players-do-something-very-unexpected?c=upw9|

“Inclusion” is the term commonly used in public education to describe students who have an IEP (individualized education plan) to provide supports & accommodations for their special needs, but are in a general ed classroom with their typical peers. Inclusion used to be called mainstreaming.

“Inclusive” means just that: to be inclusive. To include others, regardless of their differences. Inclusive Schools Week states that it’s mission is to celebrate “the progress that schools have made in providing a supportive and quality education to an increasingly diverse student population, including students who are marginalized due to disability, gender, socio-economic status, cultural heritage, language preference and other factors.”
So ‘inclusive’ is more than ‘inclusion’. It’s how we all recognize and celebrate each other’s differences.

Here is what I did at two SF elementary schools to promote inclusive language and practices and build community:
* formed an “Inclusive Schools” group of parents and teachers
* organized one PTA presentation that focused on issues around special needs and inclusion
* created multiple events around Inclusive Schools Week: film screening of Including Samuel for parents and teachers; film screening for grades 4/5 (Including Samuel); read-alouds and discussions on the subject of disability and acceptance for grades K/1; an Ability Awareness Fair for grades 2/3 with various stations on different ability/disability awareness (e.g. fine motor, vision, gross motor, emotional, dyslexia, etc.); posters of famous people with disabilities in English and in Spanish

Here’s a great ‘blueprint’ for potential activities for ISW:
{http://www.sfusd.edu/en/assets/sfusd-staff/programs/files/special-education/Inclusive%20Schools%20Week%20Packet%202011.pdf,ISW Packet}

SFUSD ISW reading and resource list:

Inclusive Schools Week is a nationwide celebration each year focusing on the work we do year-round to:
* promote inclusive, welcoming K-12 school communities,
* to embrace and support people of all natural and diverse abilities, sociological and cultural backgrounds,
* and to develop best practices.
Cities, school districts and school sites participate in a myriad of ways, including in-class curriculum, library readings, special events, civic proclamations, school and district-wide art projects, professional development intensives, and more.

Inclusive Schools Week was started in 2001 by the {http://inclusiveschools.org/,Inclusive Schools Network}, the non-profit sister organization of the Inclusive Schools Collaborative.



CIMT CAMP (Constraint Induced Movement Therapy for kids with Hemiplegia)

Camp Helping Hands


More info about the offerings from Intensive Therapeutics (located in New Jersey):


Summer 2014
Everyday Kids,One Community Intensive Therapeutics, Inc.973-771-1582


Dear Families and Friends,
Below you will find scheduling information about our 2 upcoming summer programs in July and August 2014:
  • Camp Helping Hands: A program for children with upper extremity hemiparesis.
  • Camp Leaps and Bounds: A program for children with autism spectrum disorder and/or sensory-motor issues.
Spots are filling up fast, so please don’t hesitate to register. Feel free to call us to get more information.
Thank you.
Scott Matthews
Executive Director

Camp Leaps and Bounds
An intensive occupational therapy program for children with Autism Spectrum Disorder and/or sensory-motor issues who exhibit limitations in:
  • Play
  • Social Skills
  • Activities of Daily Living
  • School

July 28th to August 22nd, 2014

(weekdays only)

Group 1:

Ages: 2 and 3 year olds

Time: 9 AM to 12 Noon

Cost: $2400


Group 2:

Age Groups: 4 to 6, 7 to 9 and 10 to 13

Time: Half Day/Full Day Options


Half day: $2400

Full day: $4800

Please call to discuss how we can individualize and prorate a camp schedule based on your availability. We can develop a schedule to meet your needs.
Camp Leaps and Boundsis for children with:
  • Sensory Processing Disorder
  • Auditory Processing Delays
  • Perceptual Motor problems
  • Low muscle tone
  • Motor Planning Problems
  • Visual Processing problems
  • Fine motor/gross motor issues
For more information please call:
The Presbyterian Church in Westfield
140 Mountain Avenue
Westfield, NJ  07090

About Us

Intensive Therapeutics is a 501 (c) (3), non-profit, charitable organization that provides group and individual occupational therapy services to children with special needs.

The organization was established in 2005 to address the needs of families who wanted individualized services by licensed professionals in a non-medical, community-based environment.

Camp Helping Hands

An occupational therapy program providing constraint-induced movement therapy for children with upper extremity hemiplegia.




NEW 2 Summer Sessions!

June 30th to July 25th

(Holiday: July 4th)

Weekdays Only: 9 AM to 3 PM

Fee: $4560.00



July 28th to August 22nd

Weekdays Only: 9 AM to 3 PM

 Fee: $4800.00

Extended Options Available



The cost of the program will be prorated accordingly to accommodate your child’s individualized schedule.



Presbyterian Church in Westfield

140 Mountain Avenue

Westfield, NJ  07090

For more information, please call:


or email:



click here



CIMT camp at the University of New England Community Therapy Center

in Biddeford, Maine.

Pediatric Constraint Induced Movement Therapy Intensive Camps

• July 14–18, 2014

• 2-week Camp for 6–10 year olds: August 11–22, 2014

Cost? $2,000 per week

What is Constraint Induced Therapy?

Constraint Induced (CI) Therapy is an intensive individualized program provided by occupational and physical therapists to help children use their arm and hand and learn new patterns of movement. The therapy is effective in improving:

• Quality of movement in the affected hand

• Use of affected arm and hand in activities of daily living (self-care, feeding, dressing)

• Coordination skills

• Fine motor skills

Camps are conducted by trained occupational and physical therapists from the University of New England.

• Theme-based activities

• Snacks

• Time to play with others

• Intensive and fun therapy sessions

• 9 a.m.–3 p.m. programming

• 3–4 p.m. educational and interactive sessions with parents

• Take home incentives

Who is a candidate?

• Children 3–10 years of age

• Children with limited functional use of one hand and arm

• Children with diagnoses that may include Cerebral palsy, stroke, head injury, brachial plexus injury, etc.

• Children who are able to follow directions and maintain attention for at least 15 minutes

How do I get started?

Contact Molly Walrath at mwalrath@une.edu | (207) 283-1954

Community Therapy Center

441 Main Street

Biddeford, Maine 04005

Discuss this with your pediatrician as a prescription is required for the program.




Candidates Ages 6 – 17 Now Sought For
Hand Arm Bimanual Intensive Training Research Study 

As part of an ongoing research study to determine the efficacy of hand arm bimanual intensive training (HABIT) after hemispherectomy surgery, the Center for Cerebral Palsy Research at Teacher’s College of Columbia now seeks candidates ages 6 – 17 from the northeast region of the United States only.  Click here for the announcement and further information.This study was initiated and fully-funded by The Brain Recovery Project.  Learn more about the our research programs here.

Looking for a summer camp for your special needs child?

Here is a list of some resources and ideas in San Francisco.
Please email me if you have anything to add, comments, etc.
and I will incorporate it onto this list!
has a camps listing for children with Special Needs:
The Parks and Rec inclusion specialist is Vicki Pitner. Summer camp registration opens on March 15. Here is some info on their website:
Online registration is here:
(again, summer camps will open registration in March)




Laurel and Sterne Schools both offer academic summer programs for kids with learning differences.








Bennett sings in a chorus at Community Music Center (CMC) and they are very accommodating. You would need to call them to find out about accessibility and your child’s needs:




Bennett has also done a cooking camp at Y.U.M. Chefs and the teacher is VERY accommodating!




BAADS and Treasure Island Sailing Center Co-Able Summer Program:
The goal of the program is to combine students with disabilities and able bodied students in such a manner that they will encourage and assist each other to become independent sailors. Ideally we would like students with physical disabilities to ask an able bodied friend to accompany them. They will sit side by side and learn from each other. Sailing is one of the few activities people with severe disabilities can participate and compete in on a level playing field with able bodied.
Week 1, June 16 to June 20

Age: 7 to 11Week 2, June 30 to July 4

Age:12 to 18
Week 3, August 4 to August 8
Age: 12 to 18
All classes start with a Chalk Talk  at 9:00 AM.
There will be a short lunch/break at 12:00 noon.  Boats will come in by 2:00 PM for a review of the days activities.  Sailors will leave the dock at 3:00 PM after securing all equipment  and cleaning up what they used.
Where:  Pier 40, the Embarcadero at the BAADS Dock!
Sailing will take place in McCovey Cove!
Instructors:  A US Sailing Certified Instructor will be provided by Treasure Island Sailing Center along with an assistant.  Two skilled young sailors will be provided by South Beach Yacht Club to assist.

BAADS will be supplying safety boats and five  Hansa 303’s for the program. The Hansa 303 is a unique vessel that requires the participants to sit side by side.  Either sailor can steer, operate the sheets and easily assist their neighbor.At the end of the program we expect students to become aware of the nautical vocabulary necessary for sailing, to become familiar with currents and tides peculiar to McCovey Cove and San Francisco Bay and, most significantly , be capable of sailing a small sloop rigged vessel in and around McCovey Cove safely.

Rules of the road and all matters concerning safety will be emphasized daily.
Cost:  $25 refundable at the end of the program.

Transportation:  No transportation is provided!Contact Info: Phone: 415.421.2225. Secure Fax: 415.421.2208. Email: Programs@tisailing.org

You can learn more about BAADS and Treasure Island Sailing here:

Bay Area Association of Disabled Sailors
The Bay Area Association of Disabled Sailors is a San Francisco Bay Area non-profit dedicated to providing sailing programs to people with disabilities and their friends, families and caregivers. 
View on www.baads.org 

Treasure Island Sailing Center 
View on tisailing.org 
BOK Ranch (therapeutic horseback riding program) is offering summer camp for ALL children!
This is a really exciting new program for us. We have put together the skills of the therapeutic riding team and local riding instructors to create a fun and safe summer camp that is challenging and fast paced enough for typical riders while at the same time being completely adaptable for riders with additional needs.
This equine based camp is truly a one of a kind 100% integrated TRUE social skills camp. Everyone is welcome-ages 6-16.
If you have a child that is a little older or a little younger, feel free to email me directly (tishcallos@yahoo.com) and we can talk about whether or not the camp would be a good match. We hope to accommodate everyone who is interested.
This is the only camp that is being backed and supported by the San Mateo County Horsemen’s Association and each child will get the opportunity to ride at least 2 times everyday. The BOK Ranch is the only PATH Premier Accredited Therapeutic Riding Center on the Peninsula, serving 130 riders with special needs each week. Finally, something siblings can do together!
Visit http://www.bokranch.org/ for more information about the camps and to download a flier and the enrollment forms.
Happy Trails,
Summer Horsemanship Clinics at Halleck Creek Ranch

Halleck Creek Ranch is pleased to announce their Summer Horsemanship Clinics for children and young adults both with and without special needs, ages 5-18.Join us for hands-on learning about horses! Give your child the opportunity to learn and practice his/her horsemanship skills by spending some quality time eye-to-eye with their favorite horse. Let us teach them the importance of their working as a team both on the ground as well as on their back!Each day will introduce a fun equine-related project, activity, riding lesson, or game designed to teach each child about their horse partners through hands-on education. Skills will include things such as: Catching and grooming, tacking and leading, trail and arena riding, arts and crafts, horsemanship skills, vaulting, and parts of the horse and tack.Campers will be given a chance to meet and interact with other campers their age, and to participate in group activities. Camp staff are experienced, certified professionals, and will be assisted by trained and qualified summer interns. Clinics will be held at our historic 60-acre ranch, nestled in beautiful Nicasio Valley in Marin County.

Three separate clinic weeks will be offered for youth with special needs on the following dates:
Ages 5-7: July 8, 9, 10 (TuesdayThursday; from 9:00-1:00)
Ages 8-12: July 22, 23, 24 (TuesdayThursday; from 9:00-1:00)
Ages 13-18: Aug 5, 6, 7 (TuesdayThursday; from 9:00-1:00)

Three separate clinic weeks will be offered for youth without special needs on the following dates:
Ages 5-7: July 15, 16, 17 (TuesdayThursday; from 9:00-1:00)
Ages 8-12: July 29, 30, 31 (TuesdayThursday; from 9:00-1:00)
Ages 13-18: Aug 12, 13, 14 (TuesdayThursday; from 9:00-1:00)

Clinic registration will be $250/week, registration will be limited, and clinics are available on a first-come, first-served basis, so sign up today by emailing Program Director, Molly Scannell at mscannell@halleckcreekranch.org

— Molly Scannell, Program Director
(415)662-2488 PH
(415)662-2421 FX
Halleck Creek Ranch
“Life Without Barriers”





    Welcome to Camp Krem Season 2014!Travel Camp Sessions are available! Join us on 7, 10 and 12-day adventures that offer exploration, education and new challenges. These exciting and fun travel vacations provide great opportunities for increased independence and self-confidence while making lifelong friendships. 


To Register:For Campers age 16+ – Please apply online for one or more sessions at our website, www.campingunlimited.org or if you wish to speak to us about
planning your sessions, call Gail at 510 222-6662. You can also email us atcampkrem@gmail.com. Camperships are available. 

June 8 – June 19: First session we are heading to Calaveras Big Trees! We will be spending time in several different state parks, including Stanislaus National Forest and El Dorado National Forest, and exploring all they have to offer. When we get to Calaveras Big Trees State Park, we will get the chance to see some of the largest redwood trees in the world, some as old as 2000 years old. We’ll also get to see some historic American Indian grinding rocks, learn a lot from the ranger talks, go bird watching, participate in environmental education programs and, of course, have a lot of fun!


June 22- June 28: Session Two we are headed to beautiful Fremont Peak State Park and Henry W. Coe State Park. While we are there, we will be sure to check out the great views of Monterey Bay, San Benito Valley, and Salinas Valley, going on plenty of daily walks and adventures!


July 1 – July 10: Session Three is going to be a session full of pride while we march proudly in the boulder creek Fourth of July day Parade.  When we aren’t representing camp and rejoicing our freedom we will be staying close to camp in the Portola redwoods and the Big Basin State parks.  We will also make our way down to the beach and play in the sand. This session will be full of great times in the redwoods, at the beach and in the parade.


July 13 – July 22: Session Four we are headed to Yosemite National Park and the surrounding area.  We are so excited to get into the park and visit some of the most beautiful waterfalls and hiking trails in California.  As with all the other sessions, we will be cooking all our own meals and playing games at the campsite. The natural beauty of Yosemite and our time spent with new and old friends will make this a trip to never forget.


July 26 – August 4: Session Five we are heading to the beautiful Angel Island, where we will cherish our amazing views of the entire bay! Here we will enjoy our time at camp, cooking all of our own meals and participating in fun group activities and games.  On our way to Mt. Diablo for a few nights we will stop at the Oakland Zoo to get even more connected to the wild.


August 7 – August 16: Session Six is our most extreme session of the entire summer.  We are heading to the Tahoe area and lake for our last ten day session of summer.  We will be going on our white water rafting trip and beforehand, we will prepare with many activities at our campsites to create the trust and friendship needed to get us down the river together and create friendships for life.


Thank you!

We are looking forward to seeing you this summer!


Gail Zigenis


Camping Unlimited – Camp Krem


Dear Colleague,

The International Alliance for Pediatric Strokewww.iapediatricstroke.org (IAPS) is assisting Dr. Jeffrey Max with recruitment for a possible future childhood stroke research study. There has been very little research regarding behavior and emotions for the pediatric stroke population, but there is a need to address these issues which continue to affect not only the child but the entire family unit. Dr. Max currently works at the University of California, San Diego where he is recognized internationally for his research in pediatric traumatic brain injury and also pediatric stroke. The thrust of the research is to identify brain imaging characteristics including microstructural white matter integrity and lesion location as well as psychosocial (e.g., family function, family psychiatric history, child’s pre-injury function) predictors of varied psychiatric disorders that develop after brain injury.

Travel expenses to participate in this study will be covered within North America. However, there are no geographic restrictions to participate. For more information about travel options from other countries, please contact Dr. Max.

If your child is between the ages of 8 – 17 and had a stroke before the age of 14, please review the information below and use the contact information to reach Dr. Max. He will need to ask a few screening questions to determine if your child is eligible to participate.

Childhood Stroke Study at the University of California, San Diego and Children’s Hospital and Health Center, San Diego:  Dr. Jeffrey Max and his colleagues are seeking children ages 8-17 who have had a stroke before the age of 14 to participate in a research study.  The project, “Childhood Stroke: Attention and ADHD,” is designed to provide more information regarding emotions, behavior, and thinking in children and adolescents who have had a stroke.  Participation includes one morning or afternoon for about 3 ½ hours of testing at Children’s Hospital and Health Center, San Diego, plus about 1 hour for an MRI appointment at a nearby MRI facility.  There will be no costs for participation, including the MRI.  Monetary compensation will be provided.

For more information or with interests in participating, please contact Dr. Jeffrey E. Max.  Write to: 3020 Children’s Way, San Diego, CA  92123, MC: CHSD 5018.  Telephone: (858) 966-5832 x5743.  E-mail: jmax@ucsd.edu.

One of the benefits of having an organization such as IAPS is to be the liaison between researchers, doctors and families. We are reaching out to all of you as organization leaders to help in recruitment for this cutting edge research. Please disseminate this email to the families in your data base and encourage them to contact Dr. Max. If you have a social media site, we encourage you to post the recruitment information on there as well. We hear from quite a few families asking what they can do to help advocate for these children. This is a chance for families to get involved in an area of research for pediatric stroke that has not been widely explored and help make a difference for the future of these children.

Thank you for your support and assistance!

Warm regards,

The Board of Directors for the International Alliance for Pediatric Stroke:

Mary Kay Ballasiotes

Dr. Steve Ashwal

Dr. Gabrielle deVeber

Nikki Ide

Jessica Spear

Dr. Patrice Lindsay

Francesca Fedeli

Grant Sources for Special Needs Kids:
I make every effort to provide high-quality and helpful grant information, but  cannot be held liable for errors or the quality of the grant sources. Information should be independently verified and confirmed. Please email me if you’d like to add or update any information! Thanks.

Variety Children’s Charity of Northern California is offering a Therapeutic Scholarship.


Avery-Fuller-Welch Children’s Foundation

– The mission of the Avery-Fuller-Welch Children’s Foundation is to provide grant funding for early intervention and professional guidance to children with physical, behavioral, emotional, and learning challenges.


Bright Steps Forward
– Grants for state-of-the-art therapy techniques, along with more traditional physical
therapy methods to achieve rapid strides in physical strength and coordination. www.brightstepsforward.org
Children’s Charity Fund
– Provides services and purchases medical equipement for handicapped and disabled children, provides educational grants to help children further their education.
Disabled Children’s Relief Fund
– Provides assistance to obtain wheelchairs, orthopedic braces, walkers, lifts, hearing aids, eye glasses, medical equipment, physical therapy, and surgery.
Easter Seals
– Provides services to help children and adults with disabilities and/or special needs as well as
support to their families.

First Hand Foundation
– Assists children with clinically relevant, health-related needs and no financial resources to cover these expenses.
Gracie’s Hope
– Funding for therapies such as, but not limited to, PT, OT, Speech, Chelation, and Hyperbaric
Oxygen Therapy. Provides needed equipment and assist families in finding respite care, and other neededservices.
Kya’s Krusade
– Provides financial assistance for adaptive equipment and physical therapy, occupational
therapy and hippotherapy sessions.
Lindsay Foundation
– Assists families with resources necessary to provide medical treatment, therapies and rehabilitative equipment in order to improve the quality of life for their special needs children.
Parker’s Purpose
– Monetary assistance up to $1,000.
United Healthcare Children’s Foundation
– Grants for medical-related services that have the potential to
significantly enhance either the clinical condition or the quality of life of the child and that are not fully covered by the available commercial health benefit plan.
Variety Children’s Charity
– Helps kids gain mobility, confidence, freedom, independence and the chance to join in the life of their community by providing funding for walkers, wheelchairs, specially-designed adaptive
bikes, strollers, prosthetic limbs and other devices to families with the most need.